Join the Ichthyosis Support Network
The Ichthyosis Support Network provides our members with moral support, practical advice, guidance, education, and resource information through telephone and email contact with volunteer peer counselors. Volunteer peer counselors are individuals with ichthyosis, or parents of children with ichthyosis, who feel they have the time and experience to offer support to others in the same situation. Our peer counselors live all over the country and represent all age groups and levels of experience. The Ichthyosis Support Network is always in need of more volunteers. The time commitment is minimal, but the rewards are great. If you feel you have something to offer someone else struggling with these diseases, click here to find out more about how you can help. The network is particularly in need of people to represent the more rare forms of ichthyosis, such as Palmoplantar Keratoderma, Pachyonychia Congenita, Pityriasis Rubra Pilaris, and Epidermal Nevus. We are also looking for people who are fluent in a language other than English, particularly Spanish.
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