Hotel Accommodations Attendees must make their own room reservations at the Westin Crown Center. Westin’s discounted room rate is $89.00 per room, per night, flat occupancy + applicable taxes. Call 1-888-627-8538 to reserve your room at the Westin Crown Center. The Reservations Center is open 24 hours a day. Be sure to name the “Foundation for Ichthyosis” to receive the discounted rate in the room block.

If you are interested in extending your stay in Kansas City, this rate is available from June 28 through July 7, 2004. However, you must make your reservation by June 4, 2004 to guarantee this discounted rate. After June 4, 2004, the rooms will be available on a first-come, first-served basis.

The conference program will feature four tracks of programs to accommodate each age group.

Track 1 (Adults, ages 18+)

• What’s new in research? • Breakout discussions on specific disease types and treatments. • Breakout discussions for women, men, mothers, and fathers. • Sibling talk (for parents) deals with concerns often experienced by brothers and sisters, such as peer issues, resentment, and concerns about the future. • Specialist panel will talk about eyes, ears, and nutritional issues. • Breakout discussions to share information and helpful hints. • Breakout session addressing depression in children. • The ABCs of advocacy. • School, workplace, and insurance issues.

Track 2 (Teenagers, ages 13-18) & Track 3 (Pre-teens, ages 9-12).

• Self-defense techniques. • Making healthy choices in nutrition teens only). • Stress relief techniques. • Affected teens and pre-teens talk (moderated by a clinical psychologist). • Sibshop for unaffected siblings (moderated by a specialist in sibling issues). • Career panel discussion, preparing for the future (teens only). • Creative expression using art (pre-teens only). • Exercise, stretching, and health. • Teen and Pre-teen Jeopardy!

Track 4 (Children, ages 1-8)

• Program specifically designed for young children. Games, toys, art supplies, books, etc., will encourage children to interact. This track will be supervised by the licensed, trained, and caring professionals of A1 Tiny Tots, a professional childcare company.

Airline Discounts & Reservations

US Airways – Receive 5% off lowest applicable published fares or 10% off with 60 days advance reservations/ticketing required from all points on US Airways’ route system. Certain dates, rules, and restrictions apply. To obtain this discount, call US Airways’ Group and Meeting Reservation Office toll-free at 1-877-874-7687, 8:00 am – 9:30 pm EST. Select Option 2, then Option 1, then Option 2. The discount is listed under "Foundation for Ichthyosis." Refer to Gold File Number 64162913.

Delta Airlines – Points of origin include US, Bermuda, Caribbean, Mexico, and Canada. Receive 5% off US Domestic published fare or 10% off published YO6/YR06 fare. Certain dates, rules, and restrictions apply. To obtain this discount, call Delta Airlines at 1-800-241-6760 and refer to Meeting Identifier Code DMN200484A.

National Patient Travel Center - You may be eligible for free transportation using the Angel Flight America Program. If you live within 1000 miles of Kansas City, Missouri, Angel Flight will fly a family in a 4-seater or 6-seater plane to and from the conference at no cost. Contact the National Patient Travel Center at 1-888-675-1405 and refer to the 2004 Foundation for Ichthyosis Family Conference Special Lift Program.