National Ichthyosis Awareness Week (IAW) took place this year October 5 to 11. The Foundation staff and many members helped to educate their local communities about ichthyosis. Once again, this special week was very successful. We have our devoted members to thank for this increased awareness. Thank you to the 110 members of F.I.R.S.T. who responded to our invitation to offer educational brochures to their family, friends, doctors, co-workers, etc. Over 600 brochures were distributed in many different parts of the country.

In addition to the efforts of our members, the Foundation staff emailed, faxed, and mailed our press release to over 70 major newspapers nationwide. A hint of our success during IAW was the major increase in website activity in the week immediately following. While scalyskin.org averages about 1600 hits per week, during the week of October 12 to 20 our website received over 4400 hits. Congratulations to all on a job well done!

Raising funds for the Foundation does not have to take place just during Ichthyosis Awareness Week. Raising money to advance the mission and programs of the Foundation can happen any time during the year. Our staff is always ready to provide guidance or help. Please note, if you are planning some kind of event to raise funds on behalf of the Foundation or you plan to use the Foundation’s name, you are required to contact the national office prior to the event. The Foundation staff must be aware of activities taking place around the country that could affect its established reputation.

Thank you to everyone who works to advance the Foundation’s mission and increase awareness of ichthyosis in his or her communities.