Sunday, May 02, 2004
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2004 Conference Details

Experience this unique opportunity to meet others affected by ichthyosis and talk to professionals.

WHEN:

July 2 - 4, 2004

WHERE:

The Westin Crown Center, Kansas City, MO

WHAT

The conference program will feature four tracks of programs to accommodate each age group.

Track 1 (Adults, ages 18+)

• What’s new in research? • Breakout discussions on specific disease types and treatments. • Breakout discussions for women, men, mothers, and fathers. • Sibling talk (for parents) deals with concerns often experienced by brothers and sisters, such as peer issues, resentment, and concerns about the future. • Specialist panel will talk about eyes, ears, and nutritional issues. • Breakout discussions to share information and helpful hints. • Breakout session addressing depression in children. • The ABCs of advocacy. • School, workplace, and insurance issues.

Track 2 (Teenagers, ages 13-18) & Track 3 (Pre-teens, ages 9-12).

• Self-defense techniques. • Making healthy choices in nutrition teens only). • Stress relief techniques. • Affected teens and pre-teens talk (moderated by a clinical psychologist). • Sibshop for unaffected siblings (moderated by a specialist in sibling issues). • Career panel discussion, preparing for the future (teens only). • Creative expression using art (pre-teens only). • Exercise, stretching, and health. • Teen and Pre-teen Jeopardy!

Track 4 (Children, ages 1-8)

• Program specifically designed for young children. Games, toys, art supplies, books, etc., will encourage children to interact. This track will be supervised by the licensed, trained, and caring professionals of A1 Tiny Tots, a professional childcare company.

Other important information:

*Discounted Travel to Kansas City, Missouri - US Airways - Receive 5% off lowest applicable published fares or 10% off with 60 days advance reservations/ticketing required from all points on US Airways’ route system. *Certain dates, rules, and restrictions apply.

Conference attendees are responsible for making their own room reservations at the Westin Crown Center. Call toll-free 1-888-627-8538, 24 hours a day.

F . I . R . S . T .
650 N. Cannon Avenue, Suite 17 • Lansdale, PA 19446
Phone: 215-631-1411 • Fax: 215-631-1413 • [email protected]


Copyright ©2004   F . I . R . S . T . This information is not intended for use without professional advice. Disclaimer[email protected]

 

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