The Ichthyosis Support Network is seeking more volunteers to act as peer counselors in the X-linked networks. A new prenatal screening test, which measures maternal estriol, in addition to other important pregnancy and fetal health markers, is detecting an increased number of suspected X-linked ichthyosis cases. Expectant mothers and their genetic counselors are contacting us for more information about this disease type.

It would be helpful to have more experienced parents to respond to their concerns and questions. If you have X-linked ichthyosis in your family and think you could be a good support person for an expectant mother, please contact Maureen in the Foundation office by clicking here> or calling 800-545-3286. We need families with young school age or pre-school age children in particular.