The Kobers' are to be commended for their outstanding efforts. Keep up the good work!

Foundation members, Donna and Fred Kober, organized their first-ever grassroots fundraiser during Ichthyosis Awareness Week in October 2004. The event was a Golf Outing and Dinner at Cool Creek Golf Course in Wrightsville, PA, held on October 8. More than 60 golfers attended the outing and $16,000 was raised for the Foundation. Congratulations to the Kober family for their outstanding efforts!

The Kobers are the parents of Derek, age 6, and Alec, age 2, who is affected with lamellar ichthyosis. After meeting families at the conference this summer in Kansas City, Donna and Fred decided they wanted to raise money to help the ichthyosis community. Along with several friends and relatives, the Kobers planned the event from scratch. Having never done a fundraiser like this, the Kobers were unaware of how many community members would pitch in to help.

First, Modern Landfill of York, PA, Donna’s employer and title sponsor of the event, donated the cost of the greens fees and carts for all the golfers. Next, Big Bob’s BBQ donated the entire dinner of grilled steaks, shrimp, scalloped potatoes, vegetables, and dessert. Finally, local businesses donated 104 items to be raffled as door prizes. Gold sponsors include Cleveland Brothers Equipment Co., Inc, County Line Quarry, Inc., Miller’s Paving, Inc., National Earth Services, Inc., and York Waste Disposal.

With sunny, 65-degree weather, the shotgun scramble started at noon and the day ended in the ballroom with dinner, trophies, and prizes. Jean Pickford, Executive Director, spoke to the golfers about ichthyosis and thanked them for supporting the important work of the Foundation. Jean extended a special thank you to Donna, Fred, Derek, and Alec Kober for opening their hearts to the ichthyosis community and organizing such a successful event. The Kobers have definite plans to host the outing again next year.

If you would like more information about how to host a golf outing, Donna and Fred would be happy to talk with you. Contact the national office by clicking here for more information. They would love to share their first experience with others and encourage more members to get involved. It was an amazing and rewarding experience.