September 30 through October 7, 2007

Now is the time to think about getting involved in an awareness week activity for this year.

One week out of the year our members host awareness campaigns and fund raising events to raise money and educate the public about ichthyosis. Ichthyosis Awareness Week will be officially celebrated during September 30 - October 7, 2007. In actuality, Ichthyosis Awareness Week can occur anytime during the year - when you can devote your energy to raising awareness or funds for the Foundation.

Educating your local community can make life a little easier for those who are affected. The simple knowledge that ichthyosis is a genetic skin disease which is not contagious, a bad sunburn, or the result of poor bathing habits can help the public better understand the disease and its symptoms.

How you can help... The possibilities are endless. Start by contacting your local newspaper to let them know about Ichthyosis Awareness Week. Share your personal story with them, or let them know that you will be hosting a fundraising event.

For those of you who have always wanted to do something to help raise awareness and money for the Foundation, but have little experience...we have the answer. The Foundation staff has created an easy-to-follow manual on how to organize a grassroots fundraiser. It is available free of charge to anyone who requests it. It contains great information about how to contact your local media and the essential steps to create a successful event, plus much more. Please call the office at 1-800-545-3286 or email us at [email protected] with your mailing address to receive a copy.