W E L C O M E !
Regional Support Network to Host Region 5 Meeting in Omaha, Nebraska
The Foundation announces Dr. William Rizzo as the speaker of the Region 5 meeting. Dr. Rizzo is a Professor of Pediatrics at the University of Nebraska Medical Center. He serves on the Board of Dire ... MORE
Plans are in place for 8th Annual Monster Dash
The 8th Annual Monster Dash Fun Run will be held on October 17, 2009. Members Dawn and Joe Johnson have been organizing this fantastic event each year to raise awareness in their community in ... MORE
Regional Support Network to Host Region 1 Meeting in Connecticut
The Foundation proudly announces plans for the Region 1 meeting. Dr. Leonard Milstone from Yale University, who is a leading expert on ichthyosis, will serve as the Keynote Speaker and will be availa ... MORE
Cute, cuddly bears available!
Many of those who attended our 2008 Family Conference in Chicago last summer may remember the adorable stuffed bears that were available for sale. They were a huge hit with the children! We still ha ... MORE
NEW ITEM AVAILABLE -- F.I.R.S.T. Baseball Cap
3rd Annual Driving For a Cure is in full swing
Michael Briggs Honored at Testimonial Dinner
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