W E L C O M E !
National Family Conference Registration Now Open!
Join F.I.R.S.T. in Orlando, FL for our 2010 National Family Conference! This year's conference will take place June 25-27, 2010. We will be staying at the Reg ... MORE
NORD Sponsors Rare Disease Day - February 28, 2010
Rare Disease Day is an annual event observed worldwide on the last day of February each year. NORD is the sponsor of Rare Disease Day in the United States. EURORDIS is the sponsor in Europe. The purpo ... MORE
2010 F.I.R.S.T. Testimonial Dinner
This year F.I.R.S.T.'s Testimonial Dinner will be held on the eve of the AAD meeting in Miami, Florida. We are very pleased to announce that this year's honorees are Dr. Phillip Frost and Dr. Gerald ... MORE
Shamrock Shuffle 5K will be held in Minnesota
Erin Egesdal, sister of Shauna Egesdal who is affected with EHK, is the Executive Director of Outdoor sports events, LLC (OSE). OSE is producing an event and a portion of the proceeds will benefit F. ... MORE
Randy Saunders
Camp Discovery
NIH Announces First National Research Study Recruitment Registry
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