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Foundation
Study on Growth Failure and Ichthyosis

(May 30, 2001) - Some infants and children with Congenital Ichthyosiform Erythroderma (CIE or Lamellar Ichthyosis), Harlequin Ichthyosis, Netherton Syndrome and Epidermolytic Hyperkeratosis have difficulty gaining weight and growing. We are seeking patients with ichthyosis and growth failure for a clinical study to investigate the causes of their growth failure to determine if skin barrier formulations can improve skin function in these children. These studies will be performed at no cost to the patient and the results of the study will be shared with the patient. Parents who have a child with ichthyosis and trouble growing or gaining weight and who are interested in learning more about or participating in our studies may contact Dr. Williams or Dr. Heyman in the Departments of Dermatology and Pediatrics, University of California San Francisco.

  • Mary L. Williams, M.D.

    Email - [email protected]

    Phone - (415)353-7884

    Fax - (415)353-7850

  • Melvin B. Heyman, M.D.

    Email - [email protected]

    Phone - (415)476-5892

    Fax - (415)476-1343

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