Our mission is to educate, inspire and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy and research funding for better treatments and eventual cures. We are a caring organization recognizing the unique challenges faced by our community and provide support with kindness and empathy. While celebrating today's strengths and successes, we strive to convey that the future will be filled with friendship, support and cures. We conduct ourselves in a trustworthy, ethical, and reliable manner in everything we do and say and provide accurate and timely information to meet the medical, social and educational needs of our community.

The Foundation's Publications Center produces and distributes reliable information for those affected by ichthyosis. A listing of the booklets and resources available for purchase is available by clicking "The Kiosk" on the menu listing on the left. Our quarterly newsletter, Ichthyosis Focus, is devoted exclusively to the special interests and needs of the ichthyosis community. The Regional Support Network (RSN) and national and regional conferences provide an effective way for our members to identify and interact with one another. The Foundation's Research Program supports biomedical research into a cure for ichthyosis, new effective treatments, young investigators, and fresh ideas.

By completing a membership application and making an annual donation of $40, you will become a member of The Foundation and join in the many benefits F.I.R.S.T. has to offer. As a member you will receive:

• Our quarterly newsletter, Ichthyosis Focus
• Participation in the Regional Support Network (RSN)
• Eligibility to attend national and regional meetings
• Participation in samplings from pharmaceutical companies
• A listing of more than 80 products that may aid in your skin care
• Discounts on several skin care products
• Access to the "members only" section of this website
• Access to physicians who specialize in the treatment of ichthyosis
• 10% discount on regional and national conference registrations (discount applies to members living in the same household)

To join F.I.R.S.T. and receive a new member packet, simply click on Become A Member, fill out the membership application and send it to the office with your donation. If you have ichthyosis yourself, or a child, relative, friend or patient has ichthyosis, joining F.I.R.S.T. will prove to be very helpful. We've learned that in the world of rare genetic diseases, contact with a community that shares a common bond can be a life-changing experience.

The Foundation celebrated its 28th anniversary this year and continues to grow stronger each day. As you navigate through the pages of this website, you will see some of the most accurate and reliable information available about this rare, genetic disease. However, please remember that one should always consult with a physician for professional medical advice.

Sincerely yours,

Jean R. Pickford Executive Director