Sun, November 29, 2009

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About Ichthyosis
The Kiosk
The Foundation is pleased to announce you can now make your purchases through the convenience of using Paypal. All transactions are fully secure. It's Fast, it's Private and it's Global. If you prefer, the following publications can also be ordered by calling the national office at 215.619.0670 or by clicking here to send an email. Please include the name of the publication you are requesting and your payment information. If you prefer, an order form can be emailed to you by clicking here.

Additional Options

  • New Item!! #2535 F.I.R.S.T. Baseball Cap 100% Cotton hat with F.I.R.S.T. logo and adjustable head band to fit all sizes.$14.95
  • Item #2550-1 (English) Ichthyosis: An Overview An overview of ichthyosis; descriptions of the primary types of ichthyosis; some frequently asked questions. 15 pages.*$1.50
  • Item #2550-2 (Spanish) Ichthyosis: An Overview An overview of ichthyosis; descriptions of the primary types of ichthyosis; some frequently asked questions. 15 pages. $1.50
  • Item #2550-3 Ichthyosis: The Genetics of Its Inheritance A description of the genetic inheritance patterns for the different forms of ichthyosis: autosomal dominant, autosomal recessive, and X-linked recessive. With illustrations. 15 pages. *$1.50
  • Item #2550-4 (English) Release the Butterfly: A Handbook for Parents & Caregivers of Children With Ichthyosis A comprehensive care-giving guide for anyone caring for a young child with ichthyosis. Covers everything from the neonatal intensive care unit to breast feeding; from creams and lotions to systemic retinoid therapy; from nutrition to overheating; from siblings to grandparents. 60 pages. $5.50
  • Item #2550-5 (Spanish) Release the Butterfly: A Handbook for Parents & Caregivers of Children With Ichthyosis $5.50
  • Item #2550-6 (English) Ichthyosis: A Guide for Teachers A tool for parents to help make the transition to the school environment for children with ichthyosis. Includes most (if not all) key information the teacher, school nurse, guidance counselor, and P.E. instructor should need to know about their student with ichthyosis. 40 pages. $5.50
  • Item #2550-7 (Spanish) Ichthyosis: A Guide for Teachers $5.50
  • Item #2580 Butterflies: The Children of Ichthyosis (Educational Video) This video is a natural adjunct to two of F.I.R.S.T.'s publications; Release the Butterfly: A Handbook for Parents & Caregivers of Children with Ichthyosis and Ichthyosis: A Guide for Teachers. A fact sheet is included with the video. It contains information on how to use the video as an effective tool to spark discussion and promote understanding in the classroom and community. $7.00
  • Item #2580-A Life with Ichthyosis: A Teenage Perspective (DVD) Provides an upbeat, positive message for all affected individuals and their families on what it's like to grow up with ichthyosis. $15.95
  • Item #2512 Royal Blue Canvas Bag With the F.I.R.S.T. logo in white. Size: 10.5 x 14 x 5. $5.50
  • Item #2536 F.I.R.S.T Bear Size: 9" x 5" $6.50
  • Shipping for international orders, please call the national office at 800.545.3286 or email by clicking here.

    *Fee is applied for non-members only

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