At long last, the Release the Butterfly: A Handbook for Parents & Caregivers of Children with Ichthyosis has been updated and is available to our members and public. Thanks to generous funding from Sovereign Bank, the booklet was updated with the help of several parents and dermatologists. The 40-page booklet focuses on the early stages of dealing with a newborn to practical matters of everyday care. This booklet will be helpful to anyone who is caring for a young child with ichthyosis, including day care providers, grandparents, and other relatives. The cost of the booklet is $5.00 plus shipping. To place an order click here.

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